Jais had surgery in early January. Our hope was that one day he could bear some weight on his legs.
We've learned that weight bearing is important for people to transfer (from wheelchair to chair/bed/car etc. and vice versa) so they don't have to use just their arms to move back and forth. This is very tough and can be damaging to shoulders, wrists and bodies in general. We feel so humbled and fortunate that Shriner's Hospital of Chicago performed Jais's surgery....
What an incredible organization!!
If you ever know of a child that requires special medical care-
Shriner's Hospital is.the.place.to.be.
This medical network of professionals and members is AMAZING to say the least. Each and every person cares deeply about kids and they make medical miracles happen every day......
One year ago, I didn't know much about the Shriners.
I mean, I knew that they wore red hats and rode around in little cars in parades :-)
Seriously that was all I knew.
If you have a moment, check them out-
It is a phenomenal organization. www.shrinershospitalsforchildren.org Thanks to the generosity of the Shriner's organization, insurance coverage is not mandatory...If you have insurance, they bill it...
If not, they don't...
Either way, it's nothing out of pocket... Can you imagine? Nothing.
A few months after Jais arrived home from Ukraine, I called Shriner's Hospital of Chicago, and asked if they could help my son.
I shared Jais's story. They said they would see him.
They said they would try to help.
In January, Jais had surgery. In February, we went back to Shriner's for two weeks of inpatient, intensive therapy.
This month, we are invited to a Shriner's Leadership Seminar in Chicago. We are honored. They want to hear Jais's story...
We want to say thank you and show them how great Jais is doing :-)
Here's a little video for the meeting, about Jais and the wonderful people at Shriner's Hospital of Chicago. It was truly such a great experience!
What can you say about a group of people that changed your child's life?
Thank you just doesn't begin to do it.
We will never forget Shriner's Hospital or the wonderful people that make such a difference in the lives of others.
In August, we took the little kids to the State Fair :-)
Mathis was pretty scared initially-
He had been home for only 4 months when his parents dragged him off to a place where the animals were HUGE, the lights were flashing non-stop, people were everywhere and the constant noise was over the top!!!
This was the first year that Emme got to ride on some rides :-)
Jais's appointment went fabulously at Shriner's yesterday!
His docs removed the purple casts and assessed their artwork/handiwork/masterpiece :-)
Conclusion: The medical team was thrilled with Jais's legs and feet and that he could stand up...(I sent them the video...LOL) After the casts were removed, his legs were gently pulled/straightened further and his feet were positioned and held at 90 degrees so they could put on straight leg splint casts.....This process is sort of a casting method that slowly stretches his legs...
Next week, we will go back and they will remove the soft splint casts and he will begin using his new AFO's (the lower leg braces to keep his ankles in place) to heal until the next steps (pun intended...Hee Hee)
Then to make the day EVEN more spectacular....
(DRUM ROLL please.....)
They measured Jais for RGO's (walking braces!!!!).... :-)
(Hospital photo from yesterday-
It looks like Jais's RGO's will be more open around his tummy...)
The RGO's (walking braces) are customized and take some time to make.....But once they are completed, Jais will spend 2 weeks in Chicago for intensive physical therapy and walking training :-) .....
They expect that he will be able to walk with RGO's and either a walker or crutches for support.
It's a long road for sure, but as we have learned....